Tuesday

I've found it harder to write recently as there are fewer milestones for Matt to reach. We know he's getting better and especially building endurance, but he's really struggling with how slow things seem to be going. He's ready to have his surgery and reminded me today that it's 3 weeks away. I wasn't sure he understood the concept of time yet, so it was amazing to hear that.

We've made a book for speech therapy that is really helping with his communication. I wasn't sure how much he would like it, but he seems to understand its usefulness. There are pages of 15 words that cover everything from pain & medicine to foods/drinks to feelings to names of people he wants to recall. He keeps joking that its going to be 3 inches thick before we have everything covered. This week we've added an Olympics page and we spend his therapy time talking about what we watched the night before. He keeps the book in his chair and pulls it out whenever he gets stuck on a word he's trying to tell us. And just like when he used to point at numbers, he'll point at the word he wants even if he's saying a different word.